NVforHD is a Nevada based organization dedicated to helping raise awareness of Huntington’s Disease. The cause is near and dear to our hearts because it has affected someone very close to us.
For 2024, we raised funds via an amazing golf tournament and each and every event we will host will go to a worthy cause dedicated solely to a cure, awareness, or helping families in need.
This last year, we announced that all proceeds from our event will benefit an incredible organization called HelpCureHD. This organization was inspired by Lee Smith, mother of MLB veteran Joe Smith. Lee was diagnosed with HD in 2012, and passed in 2020, just shy of her 62nd birthday. Joe and his wife, TNT reporter Allie LaForce are fulfilling a promise made to Lee to end Huntington’s disease, one family at a time. To do so, they created HelpCureHD, which provides families in financial need to have babies free from this awful disease. Their mission to help those suffering from Huntington’s disease has helped over 135 families, with many more to come. HelpCureHD assists families with the costs of IVF and ensures that future generations are born disease free. Check them out at www.helpcurehd.com.
Our 2024 goal at NVforHD was to raise enough money to help one family end the cycle of pain and suffering, and we achieved this goal. Helping one family with IVF is really saving future generations, potentially hundreds of people with just one act of kindness.
Thank you for all that you do, we can’t wait to see you at the 2025 event.
This year, we’re at it again but we’ve decided to make a change to our cause. This year, we’ve decided to focus our efforts on helping more people, but specifically people in our Northern Nevada region. This year we’ve decided to support the Huntington’s Disease Center of Excellence at UC Davis. This is the closest specialty care that families in our community can go to for vital services, tailored specifically to those suffering from this insidious disease. By choosing the amazing team at UC Davis, we are able to directly assist over 45 Northern Nevada patients afflicted with Huntington’s Disease.
Our efforts this year will help a team that consists of:
Come together to support the quest for a cure for Huntington’s Disease and make a meaningful difference in the lives of countless families across the nation.
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