Welcome to Nevada for HD
Huntington’s Disease is a hereditary brain disorder with no known cure. The disease is terminal and causes a deterioration of nerve cells which is likened to having Parkinson’s and ALS at the
same time. It is a horrible disease that affects entire generations of families.
This awful disease has struck our family and we’re on a mission to help in any way we can. In
our first ever event in 2024, we raised $25,000 for the great folks at HelpCureHD.com who
sponsored a young family to have their first child via IVF, a child free of HD. Please read our Thank you Letter about Brandon and Rylee, an amazing young family that are thankful for each and
every one one of you!
In 2025 we’re hosting our second annual event on May 30 th at Grays Crossing Golf Club in
Truckee, CA. Our goal this year is to help even more people and specifically those in the Reno/Tahoe area
Afflicted with the horrible disease. Please read more about our 2025 cause below.
2024 was such a whirlwind, we pulled the event together and quickly sold out! Our first even raised $25,000 for the folks at HelpCureHD, who in turn, went through their grant cycle andvetted the most amazing of candidates for us. Brandon and Rylee can get their young familystarted without the specter of Huntington’s Disease hanging over future generations. We hadthe most amazing day, weather couldn’t have been better, many laughs, a few tears and an amazing start for an amazing community.
This year, we’re at it again but we’ve decided to make a change to our cause. This year, we’ve decided to focus our efforts on helping more people, but specifically people in our Northern Nevada region. This year we’ve decided to support the Huntington’s Disease Center of Excellence at UC Davis. This is the closest specialty care that families in our community can go to for vital services, tailored specifically to those suffering from this insidious disease. By choosing the amazing team at UC Davis, we are able to directly assist over 90 families located directly here in Northern Nevada with crucial care that includes Neurological Treatment, Social Workers, Psychiatry, Physical Therapy, Genetic Counseling and much, much more.
NvforHD is a Nevada based non-profit dedicated to raising awareness and funds to battle Huntington’s Disease. Every year we will raise funds and choose a worthy HD cause that supports treatment, awareness, or an eventual cure! Feel free to contact us at 775-691-8860 with any questions or to become part of our volunteer team.
Come together to support the quest for a cure for Huntington’s Disease and make a meaningful difference in the lives of countless families across the nation.
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